Lake of the Ozarks

Update before ten

chemotherapy, Christmas, David Emerson, Lake of the Ozarks, PCa -

Before I get to your real reason for coming here an update from today I have to share a weather ‘event’. We were driving back from our annual shopping spree at Lake of the Ozarks and we stopped in Clinton, Mo, about an hour from home. When we got out to stretch out legs, etc. it was 65 degrees outside, absolutely beautiful. As was started back out, 15 minutes later it had dropped to 40 degrees and when we arrived home an hour late, it had dropped 41 degrees and was a mere 24! Overnight it is supposed to dip below 9 degrees! Crazy weather…

Hopefully the freezing rain we are also supposed to get won’t make our trip to KU Cancer Cancer too dangerous. The only thing that might make things easier is that this appointment is not until the afternoon, with treatment not beginning until 2:00pm.
I am somewhat reluctant about treatment #10, particularly after the last time. Ten days before Christmas, I could use some good news, something a little encouraging. I spent part of this morning updating a matrix Mary and I keep with all my test scores, as well as a list of what options lie ahead. After looking it over, my mind is all over the place. I’m not really sure what direction I want to go? If we have to make a change we can add DES or estrogen while continuing to see Dr. V, if we want to seek others options and possibly other clinical trials we are in all likely hood going to have to leave KC. Where we end up going would entirely depend on the trial. This is a decision I have dreaded for years. Not much has changed, the dread is still there….
So, that is where I’m at mentally, a little bit all over the place. Apprehensive, scared, encouraged, hopeful, indecisive……. wondering…. what lies ahead?

The Dog Days

Advanced Prostate Cancer, David Emerson, Khaled Hosseini, Lake of the Ozarks, PCa, The Kite Runner -

We spent the weekend at the Lake of the Ozarks and it was HOT! The temperature was in the upper 90’s all weekend but the worse part was at night and in the evenings it was so humid sitting outside was not even an option.

Some how, we had a good time anyway. We shopped, just a little, and went out for a few good meals. The most fun was at the water park. We were there for almost five hours and wiped out when we left. The heat is supposed to break tomorrow and last through the weekend.
Mary and I are hoping to get in another long weekend before Labor Day but we’ll have to see.

While there I finally started a new book. I am reading “A Thousand Splendid Suns” by Khaled Hosseini (he wrote the Kite Runner). I’m almost finished and must say that it is quite good. A much different story than the Kite Runner. It takes place in Afghanistan and though this one did not make me cry, it is equally as engrossing. I should finish it tonight or tomorrow.

My brother is recovering at home after having his gall bladder removed last week. Apparently the stone was the size of an egg and the bladder so swollen it was pushing into his liver. It was quite painful but after a few days he’s much better.

My blood test results are due at any moment, I’ll post tomorrow

Looking West

Advanced Prostate Cancer, bone scan, chemotherapy, Colorado, CT scan, David Emerson, Lake of the Ozarks -

A few medical updates after Monday.

I / we were not real comfortable waiting an additional week to start chemo (until June 16th).
Tuesday, Mary did the leg work, called the doctor’s office and inquired if if there was anything we could do in the next four weeks, or if there were any alternatives/options.

Yesterday they called back with some encouraging news. I will start treatments on the 9th as originally planned! This means on the 3rd I will have to spend most of the day at the hospital getting; a chest x-ray, a C/T scan and full body bone scan. This will mark the 6th set of the latter two tests. I imagine I might begin to glow at night, as they have to inject me with low-dose radiation each time they do a bone scan.

These last three weeks have been draining. Not only are the days longer, but the weeks seem to drag on and on. I never thought I would look forward to starting chemo. It’s just this; we made a decision, let’s get on with it.

Another somewhat stressful aspect is that we can’t really plan our summer. We wanted to take Brad to Colorado, I was going to take him camping, a trip to the lake, a weekend at my brother’s property, a trip to see my dad in St. Louis, and the annual get together with my sister from Ohio. Well all of that is currently in limbo. The whole chemo process could go according to plan; very few side effects, little fatigue, white and red cell counts stay high or near normal etc. but because we don’t know, we have to be careful not to plan too far ahead.

I pray for results like I had with Ketoconizal and other medications. I consistently responded well to previous treatments. Our hope is that the chemotherapy will get the cancer under control, my PSA will decrease, we can follow it up with other meds to keep it under control and resume a somewhat normal lifestyle for years to come. We’ll see.

I thank God daily for such a loving wife and wonderful, understanding son. I know he’ll love Colorado, when we finally get there……