David Emerson

Unwanted, but hardly unexpected

Advanced Prostate Cancer, alkaline phosphate, CT scan, David Emerson, PSA, t -

If the past 55 months have been nothing else, they have been tumultuous. Today was just another example of the uncertainty that is my life.

My PSA number was back up, this time to 99.43

I was pretty bummed out, for about an hour. Seriously, by the time Mary and I got home I was pretty much over it. It’s a good time, if there ever was one, because I’m busy…between the preparation for the upcoming golf tournament, the reorganization going on in the office, and a few other irons I have in the fire, I have little time to slow down or dwell on my PSA number.

We did leave the doctor with this plan; on October 6th I will have follow up bone and CT scans. Aside from taking up most of a day, these don’t bother me too much. I am slightly concerned however about the total number of these I have had over the years. I should probably know this off the top of my head but I would estimate that this makes a dozen. That much radioactive dye can’t be that good for me. On the 6th I will also have a PSA, CTC and alkaline phosphate test. The combined results of these tests are what we are hoping will lead us to a new plan.

The choices for my next treatment are limited; DES (estrogen), another round of chemo (3 weeks on, 1 week off versus last time when I did 1 on 3 off) or a yet to be determined clinical trial.

So that’s the update, pretty crummy overall but we’ll get through this like we have before. Many, many thanks for all the kind thoughts and prayers!

For the cause….and another month in the books.

David Emerson, Great Prostate Cancer Challenge, Skip Lockwood, ZERO -


This morning Mary and I walked in the first annual Great Prostate Challenge 5k/fun walk. It’s the third year for the event but the first year in Kansas City. According to Skip Lockwood (pictured above), CEO of ZERO, this year there will be seven events throughout the country. Perhaps this year the event may even break the $1 million mark? That would be phenomenal! Next year we hope to get FLHW more involved to help with volunteers, recruit runners and walkers, and provide support any other way we can. While FLHW is focused on research for advanced PCa, this is such a great cause and a great way to increase awareness we really need to help out.

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On another topic, once again, a month has passed by and on Tuesday I have a follow up with Dr. V on Tuesday. Time is flying by lately. I hope and pray that the current regime of pharmaceuticals is working, time will tell.
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Finally, the 5th annual FLHW Golf Tournament is less than two weeks away. We have been sold out for about a week now and that makes four our of five years! We really might have to consider having an option for a morning tee off next year. That will require a lot more coordination and volunteers but I think we can do it. Donations and sponsorships are down a little this year but I am certain the amount we donate to the Prostate Cancer Foundation will once again be significant and certainly appreciated.

Laboring Day

Advanced Prostate Cancer, David Emerson, disc golf -

If there remains any doubt as to how well I have recovered, I have played disc golf each of the last three mornings. On top of that I just mowed the lawn in addition to a number of things around the house yesterday. I would say things have returned to some sense of normalcy.

The week ahead however is bound to be chaotic, at best. Last October the company I work for announced they were selling out to a much smaller competitor. After all the legal and governmental wrangling, the merger was approved on July 1st. Many of the other departments have announced who was leading, staying and going. Many, many very experienced, professional
and sincerely wonderful people have lost their jobs.
Rumor has it that this week my department is going to finally announce our reorganization. My gut tells me I have about a 50/50 chance of being offered a position. I have been through this before, as I’m sure many of you have. It’s a horrible experience and in this economy I am sure it’s going to be even more stressful.
Regardless of what happens to me, there are a number of people I work with that are sure to be impacted. What this will do to them mentally and their family financially will in some cases be devastating. For others it will become a breath of fresh air, a new start. For the former, I send a silent prayer your way and hope that God grants you the strength required to get through this ordeal.

Slap!! That’s the sound of reality smacking me in the face!

Advanced Prostate Cancer, David Emerson, PCa -

I’ll try not to bore you with too many details, but this requires a little background…

Last Saturday, August 22nd, I played disc golf as usual. No big deal.
Sunday, I went to Emporia, KS to play in a disc golf tournament. On the way to Emporia
my right thigh/hip started to hurt a little bit. The best way to describe this is it that it is reminiscent of the original pain from five years ago.
I brushed it off to the 90 minutes in the car, but knew deep down it must have been more. I popped a couple Advil and really thought nothing more of it. Just as the second round started, I took a few more Advil and that I thought was the end of it.
Monday I got up to catch a plane to Orlando for work. I worked out, maybe too hard, and headed for the airport. Again, three hours of sitting and my leg wasn’t feeling real good by the time I arrived in Florida, popped a few more Advil. I was able to catch a decent night sleep but Tuesday was 9 more hours of sitting in a meeting room. Not so good , my leg was reminding me who is in charge, more Advil.
This continued off and on all week, Advil about every 12 hours, but sleeping was not an issue. I took the weekend off from disc golf, which as you regulars know, was possibly the most painful part of my week!
The good news is it has now been over 48 hours since my last dose of Advil. The pain isn’t gone 100% but I am feeling way better than I was on Friday night and Saturday afternoon.
I have felt this way at different times over the last four years but it has been a while. I had forgotten the paranoia, the dread, the deep feelings of doubt. You start to question the past decisions, the lack of future choices, the what if’s, the what’s next, etc.
I’m feeling better, much better now. We had an FLHW Board meeting tonight and just being able to sit with my close friends and sharing in conversation with them always helps.
Just a little speed bump? I guess we’ll find out in two weeks when we meet with the doc!

What a weekend

Advanced Prostate Cancer, David Emerson, disc golf, Dynamic Discs Open, Emporia KS, Lake Perry, PCa -

Here’s what you do when you have cancer – you try to ignore it. Maybe not ignore, perhpas it’s better if I say go on without it as best you can.

Friday, I left work a little early and joined a friend on his sailboat at Lake Perry. Lake Perry is about an hour from here, between Lawrence and Topeka, KS. It was a bit windy when we arrived but we were out on the lake by 6:30 PM and were able to sail for two hours.
It was unbelievably relaxing and Jim, I’m ready to go back when you are!!
Yesterday, I played disc golf with a smaller crowd since some of the guys were out playing in a tournament. It was good to see Mark back out with us. He’s first and foremost a ball golfer but I think he’s slowly but surely getting the bug, plus his back is feeling better. Regarding my game, I just couldn’t catch Rich, falling one shot short.
Last night we had family over for dinner on the patio and then enjoyed a fire in the fire pit. We really enjoyed the evening. The weather remains unseasonably cool…it’s hard to believe it’s August in Kansas City.
Today we drove to Emporia, KS and played in a disc golf tournament. I joined Pete, Steve and Steve. I played better in the morning than the afternoon and finished in a tie with Pete for 6th place. Yet another Steve played lights out this afternoon to move from 6th to 2nd place. Sometimes it’s really fun to watch another guy you are playing with tear it up. He’s also one of those very quiet, humble guys – great job Steve H.!!
So not real exciting to read, but I hope you found it to be worth sharing. I just wanted to share with you the fact that I’m not slowing down!

How low can you go?

Advanced Prostate Cancer, Cardinals, David Emerson, disc golf, PCa -

I’ll take a few points, just the beginning of a trend!

This morning I’m off to the doctor for my monthly shot and blood tests.
As always, it’s a crap shoot but my body is telling me things are going well on this new medication. At times, I find it somewhat amazing how in tune I am with every little tweak, ache, pain, etc. that I experience. It comes from four and a half years of constant worry, constant obsession. Right now I am feeling good vibes!

I spent Saturday and Sunday in St. Louis with my brothers. I introduced my nephews to disc golf and really hope they catch the bug. I watched a little golf with my dad and then took in the Cardinals game with my brothers. It was a great game and what a beautiful stadium! It wouldn’t be a trip without providing the family with a little tech support! Two printer, scanner, faxes in and working, one with wireless support! Note to the industry, Plug and Play is a joke!

It’s a rainy Monday, is this God’s way of telling me he is washing away the PCa cells? Perhaps. One way or another, I’ll know in about three hours.

Finally, school starts on Wednesday. Brad will be in seventh grade…I’m in shock! Where is the time going?

Prayers

Advanced Prostate Cancer, David Emerson, PCa, prayers, prostate cancer -

I’m not sure if I have, or even should share the following? I figure, what the heck.

As we sat in Mass on Sunday and prayed, I stopped to think what I really was asking God for when I pray.
I don’t ask for a cure to this disease, should I? Would that be selfish?
Mostly, I pray for time. I pray for good test results. I pray for happiness.

Next Monday is huge. Monday we will find out if re-starting Keto has helped. If not, we move on, but the options are not very encouraging.

The good news is that I feel great and would guess it is working, but we’ve been disappointed before, so I try not to get to excited. As Mary has put it, we are cautiously optimistic.

So I conclude with this:
God, give me strength
Allow me happiness in he midst of turmoil,
Provide me more time,
And the sense to know how to use it properly
In Jesus name,
Amen