David Emerson

I’m not ‘Lovenox’

Advanced Prostate Cancer, David Emerson, DVT, Lovenox -

Last night I came home from work and after cleaning up dinner I noticed my right leg was slightly swollen and felt rather firm or tight.

Even though it was going on 7:00pm we called my Oncologist office, since they told us when I started chemo to call for whatever reason. Dr. V himself called back in ten minutes. He told me to keep it elevated the rest of the evening and come see him at 8:00am this morning.

Knowing that he would have to work us in, we prepared for another long day at the doctors office.

I was in the lab waiting for an ultra-sound by 8:15, finished with the scan and in his waiting room by 9:15. So quick my head was spinning.

So it turns out I have small blood clot or a Deep Vein Thrombosis (DVT) in my right calf. The good news is clots in this area, though a reason for concern, are far less serious than if it were located somewhere else. The bad news is for at least the next six months I have to take yet another drug, Lovenox.

At first blush this might appear to be so bad, expect the Lovenox is self administer as explained here. And comes with these side effects:

• Bleeding or oozing from surgical wound
• Any other bleeding episodes; for example, bleeding at the site of the injection, nosebleeds, blood in your urine, or if you cough or vomit blood
• Spontaneous bruising (a bruise not caused by a blow or any apparent reason)
• Pain or swelling in any part of your leg, foot, or hip
• Dizziness, numbness, or tingling
• Rapid or unusual heartbeat
• Chest pain or shortness of breath
• Vomiting, nausea, or fever
• Confusion

OK, I know this is serious, but Mary Brad and I are currently laughing about the last one!

With nothing more to say, I’ll just end with this; the saga continues……

Click here, sign here!

Advanced Prostate Cancer, David Emerson, PCa, Prostate cancer petition -

Today I am writing to ask for your help.

There is a petition that the PCa community is circualting.
On January 20, 2009, a new President of the United States will be sworn in.
On January 21, 2009, that President will receive this petition.

http://www.prostatecancerpetition.org/

Please click on the link above and, after reading it, if you feel compelled to do so, please sign it.
There are currently over 9,000 signatures and we are trying to get to 10,000 by the end of September (Prostate Cancer Awareness Month).

The Dog Days

Advanced Prostate Cancer, David Emerson, Khaled Hosseini, Lake of the Ozarks, PCa, The Kite Runner -

We spent the weekend at the Lake of the Ozarks and it was HOT! The temperature was in the upper 90’s all weekend but the worse part was at night and in the evenings it was so humid sitting outside was not even an option.

Some how, we had a good time anyway. We shopped, just a little, and went out for a few good meals. The most fun was at the water park. We were there for almost five hours and wiped out when we left. The heat is supposed to break tomorrow and last through the weekend.
Mary and I are hoping to get in another long weekend before Labor Day but we’ll have to see.

While there I finally started a new book. I am reading “A Thousand Splendid Suns” by Khaled Hosseini (he wrote the Kite Runner). I’m almost finished and must say that it is quite good. A much different story than the Kite Runner. It takes place in Afghanistan and though this one did not make me cry, it is equally as engrossing. I should finish it tonight or tomorrow.

My brother is recovering at home after having his gall bladder removed last week. Apparently the stone was the size of an egg and the bladder so swollen it was pushing into his liver. It was quite painful but after a few days he’s much better.

My blood test results are due at any moment, I’ll post tomorrow

What does David actually do?

Advanced Prostate Cancer, David Emerson, EMBARQ, patents, US Patent Office, Wall Street Journal -

I hope this doesn’t come across as braggadocio in any way, shape or form? My intent is this; I have shared so much about me personally, but very little about work and what I actually do for a living.

I am a Product Development Manager at EMBARQ. EMBARQ is the local phone company that was spun off from Sprint in May of 2006. We are in markets across 18 States, mostly in rural or smaller communities, however we provide services Orlando, FL, Las Vegas and some medium sized communities in other states as well. We provide local, long distance, high speed internet and re-sell DISH television services.

So what do I do as a Product Development Manager? In a nut shell I am a dreamer, an innovator and an inventor. For the past eight months I have been leading this project to fruition:

It’s pretty exciting after spending months and months on a project to have it written up in the Wall Street Journal!

In addition to this project I have eight Patents on file with the US Patent Office and 16 more that are in various stages of pre-submission. Though it might sound impressive, in my opinion, until the Patent Office actually grants the Patent, it doesn’t matter a whole lot (though I do take a little pride in this).

I could go on but brevity is key! In the end I hope this provides another look into the man behind the blog.

“WBC” at an all time low….

Advanced Prostate Cancer, chemotherapy, David Emerson, wbc, white blood cell count -

I just received a fax with the results of Monday’s blood test and my white blood cells have run off somewhere!
WBC count: 1.7

White blood cell count (WBC) – The number of white blood cells in a specified volume of blood. White blood cells form the mainstay of your immune system — a low number might increase your risk of infection and a high number possibly indicating that you have an infection.
According to today’s report, normal is between 4.0 and 10.5. At 1.7 all I can say is Yikes! It’s amazing that I’m not more fatigued. Overall, the key is to reach full recovery by August 11th. My red blood cell count is still in the normal range so there is some good news.
By the way, I’m sure you’ve noticed something looks different around here? Brown was so blah, this place needed a little sprucing up! I hope you like it?
Just a brief update, enough for today!

The brick wall

chemotherapy, David Emerson, disc golf, FLHW, Jack Johnson, Journey to the Center of the Earth -

So last week caught up with me on the back 9 Saturday morning. I played pretty good on the front but when we made the turn, my body and brain forgot to follow! I flamed out due to a combination of wicked summertime humidity and overextending myself!

Just to recap last week:
Monday: Chemo treatment #3
Tuesday: Work day, then Tom Petty concert after 3.5 hours of sleep
Wednesday: Work day, 9 hole golf league after 5 hours of sleep
Thursday: Work day
Friday: 1/2 Work day, then 18 hole golf tournament
Saturday: usual disc golf round, then I took Brad to see “Journey to the Center of the Earth” in 3D

So by yesterday, Mary was none to happy with me, and frankly, I can’t blame her. However, I have always been this way; I can’t just sit around, I have to be doing something. Even yesterday, I had breakfast with a PCa friend, went to Mass and then I went to serve my time under house arrest. I worked on bills, the FLHW.org Foundation business and did a few loads of laundry. Just “took it easy”!

So we reach Monday. I got a great nights sleep, worked out and gave my blood sample this morning. I feel so much better than Saturday or Sunday.

I really don’t have a conclusion here? I guess I’ll just say this “Mary, I promise the week after my August 11th treatment, I will take things MUCH easier than this week!”

That is, unless Mark calls me with an 11th hour cancellation to the Jack Johnson concert on the 15th!!!!

OK, just kidding Mary…..sort of…..

I found a cure for the lack of sleep and Dex:

Advanced Prostate Cancer, David Emerson, music, Rock and Roll, Sprint Center, Steve Winwood, Tom Petty -

Yesterday, after getting through most of the day on 3 1/2 hours of sleep I got a call from my good friend Mark. He was quick and to the point, “How are you feeing today? Great, want to go to Petty?”

So last night, along with 14,500+ other Kansas Citians, we attended the Steve Winwood and Tom Petty and the Heartbreakers show. We did not leave disappointed!
Steve Winwood’s voice is still incredible after all these years. If I closed my eyes during “Dear Mr. Fantasy“, I would have though it was off the original 1967 recording…it was awesome!

Petty and the Heartbreakers rocked for just over two hours. Here is the set list, one hit after another, after another!
You Wreck
MeListen
To Her Heart
I Won’t Back Down
Even the Losers
Free Fallin’
Mary Jane’s Last Dance
Sweet William
End of the Line
Breakdown
Saving Grace
Face in the Crowd
Honey Bee
Learning to Fly
Don’t Come Around Here No More
Refugee

Encore:
Runnin’ Down a Dream
Mystic Eyes
American Girl

All I can say is, thanks Mark for a wonderful time! Tonight, I go to bed early (after my weekly Wednesday evening ball golf game!) and try to catch up on some of that missing sleep!

I Don’t like Monday’s

Advanced Prostate Cancer, chemotherapy, David Emerson, Dexamethasone, Monday songs, PCa -

…and a few others….

“Monday, Monday” -The Mamas & The Papas
“Manic Monday” -The Bangles
“Monday Morning” -Fleetwood Mac
“Come Monday” -Jimmy Buffet
“Stormy Monday” -The Allman Bros.

The Dex won the battle last night! I woke at 1:30, tossed and turned until 2:15 then got sucked into “The Wire” again until about 4:45am. Maybe 30 minute more sleep and Buck and I got up at 6:30.

I am currently attempting to function on about 3 1/2 hours of sleep. I should go home but have a number of calls to be on at work this morning.

Yesterday’s appointment was long. I guess I am just going to have to stop complaining about it and get used to it. Things were running behind again; we arrived at 8:30 and left at about 1:45. We got lunch, ran an errand and returned home just before 4:00pm.

Somehow we found the energy to got see “Momma Mia” at 5:15, it was good. Definitely a ‘chick flick’ but I really enjoyed it, even the Abba music. You know they are from Sweden, apparently they opened a museum last year in Stockholm. I guess my visit there was a year early!

My White Blood Count returned to normal levels as did most of my others. My red is right on the border line of low but nothing seemed to alarm the doc.

My PSA remained steady at 53.4, at least it has reached a plateau. We were told by Dr. Van, and had read on-line, that it can take 10-12 weeks before we see results. This was just 6 week so we are hoping the tide will begin to turn next appointment (August 11).

That’s the recap for my Monday!

Ready, set, 1, 2, 3 go!

Advanced Prostate Cancer, cancer budget, David Emerson, NCI -

Monday is treatment number three already. One and two have been, for the lack of a better term, a piece of cake! I have run into a number of people that, based on their reaction, are stunned I’m in the midst of chemo. Not sure what to say? We still have a long road ahead of us, but so far….so good.

The next thing I have to say might be a little controversial, but here goes anyway. I have tried to avoid topics such as this, but this one has been bothering me for quite some time. Remember, it’s my blog, I started this and continue it to share what I’m thinking, and what I am going through. Please read the following, agree, disagree…if nothing else just think about it for a minute.

On May 30, 2007, President Bush announced his proposal to double America’s initial commitment and provide an additional $30 billion to combat global HIV/AIDS over the next five years.

$30 Billion dollars! What about Americans dealing with cancer, cancer of all kinds?
In 1997 1.4M Americans were diagnosed with cancer. This was in addition to the millions who were already living with the disease, including yours truly.

The total proposed 2009 budget for the National Cancer Institute is just over $6 Billion and our government leaders send an equal amount, every year, for the next five years overseas.

That is all I have to say, I’m not going to present an argument of AIDS vs. Cancer, etc. I just wanted to present this one little position and ask you to think about it.

Check point

Advanced Prostate Cancer, chemotherapy, David Emerson, Indiana Jones -

Nothing eventful to report today. My next treatment is in a week and I’m still feeling great, I have all my hair and am dealing with the metallic mouth.

According to this mornings blood test however, my white blood count is down to 2.9 (normal 10-12 range). This dropped from last week. During treatment 1 wbc dropped the first week and recovered in weeks 2 and 3. This time it dropped after week 1 and further after week 2. I sure hope it recovers for next week.

Overall my combined counts are fine, just a little low on the wbc and red blood cell count.
PSA will not be checked until next week.

The weekend was rather normal; disc golf three days in a row. Friday we had a department event and the managers cooked pancakes for breakfast then I taught 17 people how to play the game. I only walked along and gave guidance as we played nine holes, I think everything really enjoyed the morning.

Saturday I played with a small group but it included one of my co-workers from Friday! We were delayed by rain about half way through but finished in time to drive through a mid-summer monsoon on the way home. Sunday my brother in law Rich put a whooping on me, and even as competitive as I am, it was fun to watch!

Saturday we saw the new Indiana Jones movie, I’d give it a C+. We had most of the family over yesterday for dinner and as I mentioned above I had my monthly appointment this morning. This was for Lupron and Zometa, the chemo treatment is next week.

Back to the grind……