FLHW

A long journey, that has just begun.

Tonight our foundation, Faith – Love – Hope – Win (flhw.org) is having our first in what I hope turns into an annual event. A very, very generous man has offered to donate 10 percent of the total sales (between 5 and 8 pm) at his greenhouse to our foundation. The details are within this flyer.

This however is not the point of today’s blog. As I was coming into work today I was thinking about tonight and what Bill is doing for us and other non-profit groups here in Kansas City. I was also thinking about all the other people that are helping and have helped over the years. There are the smaller signs of support and large ones and the difference is not necessarily monetary. Sometimes it’s the little things that touch me, like the simple beauty of that flyer. The two guys that helped us to design it were were so generous to offer their time and talent. One I barely know, the other I have never met, I don’t even know his name.
I guess my points are these; not only am I deeply touched by their kindness and support but I am also rather proud that this little effort Mary and I began four years ago, is starting to gain some serious momentum. True, we’ll never be Livestrong or Komen but that is not our goal or our purpose. It would be ideal for the Prostate cancer community if there was a single, national, powerful group, but that might be someone else’s battle. FLHW has come a long way in four short years, $100,000 raised is nothing to sneeze at! 2009 however, in the midst of this economy, is going to be our best year yet!
I am wandering in my thoughts a bit today but it is my blog and sometimes I do that. I’d like to once again say thank you to our Board, all the volunteers, sponsors, players, donors and attendees that have helped make each of our events successful.
At times the world can be harsh and cruel and hard to live in. At other times the genrousity and kindness of strangers that reminds me that God put me here to help others and do my best to live a selfless life. For me, it’s too bad it took so many years and Prostate Cancer for that to really sink in.

Caution – flying plastic!


This evening, twenty four hours later, I still find myself exhausted! However, without a doubt, it was worth every minute, every step, every throw!

Yesterday we held the 2nd Annual FLHW Disc Golf Tournament. Though the weather started off a little cool and breezy, by mid-day, the winds subsided, the clouds passed, and the sky was a clear blue with a warm sun shining down on us. The day ended up being absolutely perfect.

We had 78 disc golfers and were privileged to play on a private course, located on an unbelievable piece of property here in southern Johnson County, Kansas. The owner is a wonderful and extremely generous man to whom Mary and I owe much gratitude.

I’ll provide more details and many, many more pictures in a few days. We are very pleased that we raised somewhere in the neighborhood of $3,000. All of which will be donated to the Prostate Cancer Foundation (PCF) to support the research needed to develop improved treatments and a cure for advanced Prostate Cancer.

Mary and I would personally like to thank each of the Board members who generously dedicated their time to making this event a success, all of the sponsors, volunteers and players that shared in our mission for a cure. God bless all of you!

Spring and a few other things

This might finally be the week when we put winter behind us. I say that with some trepidation, not wanting to jinx things. I planted spinach about a month ago and it is finally making some real progress, however harvest and a fresh salad from the bounty are weeks away.

We played in a rain soaked disc golf tournament on Saturday and I hope to get out a few times this week and weekend. Additionally, plans are well under way for our second annual FLHW disc golf tournament on May 9th. Details are at http://www.flhw.org/2009discgolf.htm

Since returning from Houston, I’ve really been trying to take the doctor’s advice to just get on with it. We have been really wanting to get back to Florida and may try to plan a trip for when school gets out. I could use some sand between my toes!

My next appointment with Dr. V is next Monday and for once I am not real concerned. Well maybe just a little. There is potentially some good news on the horizon for those of us with advanced prostate cancer.

I’ve written about this new drug, Provenge, a number of times over the years. My first post on Provenge was on October 24, 2006. Next week the company is scheduled to announce the results of their Phase III trial and rumor has it, the news is good. What that means is, in the best case scenario, the drug may be available in the first quarter of 2010. Available and approved or paid for by insurance are two completely different things as well. It is still good news and apparently there may be more regarding other treatments in the months ahead. Again, nothing curative, simply drugs or treatments that may extend the life of those with advanced PCa.

ever so briefly

I know it’s been over a week, but I don’t have a lot to report.

I had a bone scan on Monday (Feb 23rd) and the good news is that it showed no new tumors. Also, the previously existing areas were stable. Ideally, the report would have indicated the tumors had shrunk, but we are choosing to look at the positive, they didn’t grow or spread!

We also gathered all my medical records and sent them to a PC medical expert for further recommendations. We have a call with him on Monday evening, and we are hopeful that he will be able to recommend several potential doctors that offer treatments that would be customized to be more effective for my individual condition.

Finally, on Tuesday night we held another FLHW Texas Hold ’em Tournament. I am pleased to report that we were able to raise another $1,300 for prostate cancer research. Congratulations to Mike (in the hat) who made a valiant comeback to beat Kevin for the title. Next up for the FLHW foundation is our second annual disc golf tournament on May 9th.

Happy blog-aversary!!

February 2, 2005
The title, “Start of the end”.
How short sighted was I?
So many, many things have happened since then, I’ll try to communicate the highlights in the list below:
– Fear
– Acceptance
– The root of FLHW
– Disappointment in Houston
– Kenny Chesney, Boston concert, etc.
– Disc golf
– The beauty of Spring
– The continued importance of friends and prayer
– Reaching nadir so quickly
– Selecting an Oncologist
– The emotional ups and downs begin
– Anna Maria Island
– Sweden, the British Open
– The Lake
– The Kooks
– Holidays
– It’s not about me
– Birthdays
– The passing of Leona
– The passing of Ric, Rick, Wes, Aubrey, Chef Roger and other PCa brothers
– The power of Hope
– It is what it is
– Chemotherapy
– Friends from: New Zealand, Australia, Las Vegas, Tennessee, New York, Texas, Florida and more
– $100K for PCF
– Brad
– Mary
– the future….

Another successful year for FLHW

As many of you know, one of the first things I did after being diagnosed with advanced pc was to establish a non-profit foundation, the Faith – Love – Hope – Win Foundation. The simple mission of this foundation is to raise awareness of the importance of testing and early detection and to raise money to fund the research required to develop improved treatments and ultimately, a cure. In just three and a half years we have donated over $100,000 to the Prostate Cancer Foundation. Here is a recent message that we sent to some of our supporters:

On behalf of the Board of the Faith – Love – Hope – Win Foundation, we would like to personally thank you for your participation and support of the 2008 FLHW golf tournament.

This year’s event was a great success; a success that would not have been realized without your generosity. We were blessed with a beautiful day, a full field of golfers, and an exceptional group of volunteers.

The result of this year’s event is a $32,000 donation to the Prostate Cancer Foundation (PCF). This donation will be doubled through a matching program at PCF. Furthermore, these funds will be dedicated to support research for improved treatments and a cure for advanced prostate cancer.

It is through your participation, coupled with the support of all of our sponsors, participants, and volunteers that we have, in just four short years, cumulatively donated over $100,000 to PCF for advanced prostate cancer research.
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The research that our donation supports is what gives us hope that a cure will be discovered in our lifetime. Thank you for sharing in our hope.

Mark your calendar now for the 2009 FLHW Tournament which is scheduled for Friday, September 25th at Ironhorse Golf Course. We look forward to seeing you there!

I extend this message of thanks to all who have supported our mission through the years!
2008 was our most successful year so far:

Why I do this or IINAM, chapter?

I was going through the photos from the golf tournament last night and thought I would use the one on the left. My plan was to post an entry about why I put so much into the annual event. Not to be repetative, but It is not about me (IINAM).
Yes, a cure in my lifetime would be ideal, but not realistic. I hold on to hope however. You see, I do this for the Wes Witchers of the world. Wes was a young father like myself who was also diagnosed with advanced PCa. Wes’ diagnosis was more agressive and we lost him earlier this year. I’ve never met his wife Sheri or his daughters but hope to do so later this month.
Sheri sent me the picture on the right yesterday. One of the daughters races sprint cars on tracks around central Missouri. As you can see, they made a little room on their car for ‘the cause’. I knew nothing about this until I got the photo, I was brought to tears.
And so, this is why I do this…..
[The pictures from the golf tournament are on your right]

Sunny day, keeping the clouds away….

For the fourth straight year we were blessed with ideal weather for our golf tournament! There was not a cloud to be found, a very mild breeze and the temperature was in the low eighties. Someone up there is watching over us!
The events of the day have left me somewhat at a loss for words…did you ever think that was possible?
We don’t have a final tally, but things are looking good for making our goal. I should have a better estimate after a few more payments come in over the next week and I receive the final bill from the golf course.
After two holes-in-one last year, no one was able to win the car or cash this year. All three flights resulted in scorecard playoffs and last year’s overall winners were able to defend their crown. The final scores and winners can be found at:
I’ll upload all the pictures tonight and provide a link in a blog post tomorrow.
I really cannot thank everyone enough, including those who volunteered, played, sponsored and supported us through donations. Each year this event seems to be more successful. Once again I am reminded not to underestimate the kindness and generosity of others!
This morning I find myself feeling really blessed!

‘Faith’, a different kind

I didn’t mean to let 8 days slip by, but I’ve been a little busy. We are wrapping up the plans for our fourth annual golf tournament and that has been consuming my spare time.

The event is once again sold out! Thanks to a number of generous individuals and companies, we have great player’s packs, many, many raffle items and a list of exceptional live auction items. It is sure to be a great day!

The second and third week after my last chemo treatment have been somewhat ‘normal’. The metallic taste disappeared after about eight days, the fatigue was gone after the first weekend and life resumed, as much as that is possible. My upcoming treatment number on Monday, which will be #6 will mark the halfway point. Already?

On another note, I received the attached story from my friend Tom and thought it was worth sharing. At times God tests us all.
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This dog was born on Christmas Eve in the year 2002. He was born with 3 legs – 2 healthy hind legs and 1 abnormal front leg which need to be amputated. He of course could not walk when he was born. Even his mother did not want him.

His first owner also did not think that he could survive. Therefore, he was thinking of ‘putting him to sleep’. By this time, his present owner, Jude Stringfellow, met him and wanted to take care of him. She was determined to teach and train this dog to walk by himself. Therefore she named him ‘Faith’.

In the beginning, she put Faith on a surfing board to let him feel the movements. Later she used peanut butter on a spoon as a lure and to reward for him to stand up and jump around. Even the other dog at home also helped to encourage him to walk. Amazingly, after only 6 months, like a miracle, Faith learned to balance on his 2 hind legs, and jumped to move forward. After further training in the snow, he now can walk like a human being. Faith loves to walk around now. No matter where he goes, he just attracts all the people around him.

He is now becoming famous on the international scene. He has appeared in various newspapers and on TV shows. There is even a book entitled ‘With a Little Faith’ being published about him. He was also considered to appear in one of Harry Potter movies.

His present owner Jude Stringfellow has given up her teaching post and plans to take him around the world to preach that even without a perfect body, one can have a perfect soul.
In life there are always undesirable things that occur. Perhaps one will feel better if one changes the point of view from another direction.